Trials / NCT07854899
Natural History Study of Advanced RCD
Recruiting now N/A Natural history / observational
- Sponsor
- SparingVision
- Treatment
- Eye examinations; Questionnaire
- Gene
- Not stated
- Conditions
- Rod Cone Dystrophy
- Ages
- 18 Years to no upper limit
- Enrollment
- 100 participants
- Started
- 2026-09-11
- Main results expected
- 2028-09
- Results posted
- Not yet
- Record last updated
- 2026-10-08
What the study is testing
ECSTASI is a Natural History Study, which will be monitoring how standard of care (SoC) affect advanced rod-cone dystrophy (RCD), a type of eye disease also known as retinitis pigmentosa. No experimental, investigational or any other drug or treatment will be tested during the study.
This study collects information in 3 parts:
Part 1: retrospective health information from medical records (up to past 10 years), Part 2: prospective health information from in-person visits (up to 1 year), and Part 3: prospective health information from medical records (up to 1 year). Participants will decide if they wish to participate in all or only to some of these parts.
Where it runs
Belgium (1)
- Ghent University Hospital, Ghent (recruiting now)
France (1)
- CHNO XV-XX Paris - CIC 1423, Paris (not yet recruiting)
Ireland (1)
- Royal Victoria Eye And Ear Hospital, Dublin (not yet recruiting)