Trials / NCT03814499
Natural History Study in Subjects With Usher Syndrome
Completed Observational Natural history / observational
- Sponsor
- Fondazione Telethon
- Treatment
- Not listed
- Gene
- Not stated
- Conditions
- Usher Syndrome, Type 1B
- Ages
- 8 Years to no upper limit
- Enrollment
- 56 participants
- Started
- 2018-06-01
- Main results expected
- 2020-12-30
- Results posted
- Yes
- Record last updated
- 2024-12-09
What the study is testing
Natural History Study in Subjects With Usher Syndrome ((USH1B) is a multi-centre, longitudinal, observational study designed to evaluate disease progression in subjects with USH1B by several vision-related assessments.
Where it runs
Italy (1)
- Eye Clinic of the University of Campania Luigi Vanvitelli, Naples
Netherlands (1)
- Stichting Oogziekenhuis Rotterdam, Rotterdam
Spain (1)
- Instituto de Investigacion Sanitaria de la Fundacion Jimenez Diaz, Madrid